Finally the Rheumatoid Disease is planned for February 2, 2012. Yes, the same day as Groundhog Day. Why another,”awareness” day for a disease that most of us know about? Wait, do most or even a few people truly know even one fact about RA? Here’s a couple quick ones for you:
What is RA?
An unpredictable, destructive, autoimmune disease. A person’s immune system attacks his or her own body tissues.
Who can get the disease?
What’s the cause of RA?
It’s may be due to genes, environment and hormones.
What are a few of the symptoms of RA?
Joint inflammation / stiffness – Any joint can be effected, however hands and feet are traditionally the first to show symptoms.
fatigue, swelling and extreme pain in ones joints. This commonly begins in the hands, feet, back, elbow and or knees.) Joint pain is usually seen in a symmetric pattern, effecting both sides of the body, although this is not always the case.
What’s the cure for rheumatoid arthritis?
There is none. Medications to treat RA include painkillers, steroids, disease-modifying / anti-rheumatic drugs, non-steroidal anti-inflammatory drugs and biologics, such as Enbrel and Humira.
As the disease progresses it can lead to complicated and sometimes fatal conditions:
Dry Eye (sclertis) / uventis – The pain could be severe. And if it’s not taken care of, scleritis could create a hole in the eyeball. One form of uveitis, called, “posterior uveitis”, could cause permanent vision loss. Other complications from uveitis include glaucoma and cataracts.
Heart disease / inflamed lining of the heart. Both linked to sudden heart attacks.
Lung pluralism - Inflammation of the lung lining. Painful breathing
Erosion of the spine, which can lead to the deterioration of the cervical collar. This condition can lead to spinal cord syndrome, which is fatal. (This is how my dear Mother died from this serious disease.)
The sooner one gets diagnosed with this disease, the better. Often, joint damage occurs within the one to two years of the onset of rheumatoid arthritis. Early diagnosis and treatment is essential, in efforts to prevent extensive joint damage.
For more extensive information on The First Rheumatoid Awareness Day, on the disease and on how you can help those with RA, please contact Kelly Young at the Rheumatoid Patient Foundation. The only charity just for Rheumatoid Arthritis! http://rheum4us.org/press-release-rheumatoid-arthritis-awareness-day/
Thank you for a few minutes of your time. Oh, and thank you Phil for the free promo for a extremely important cause!
Meet Nicole Galloway – Miller. Nicole is an independent, online, book reviewer.
So what initially interested you in doing book reviews? How long have you been a reviewer?
I started my book review blog as an assignment for my Master’s in Fine Arts Program at Seton Hill Universityy. It is a low-residency program. In place of class discussions, students are required to write a review blog post. In addition, students comment on the blog entries. I’ve only been reviewing books since last January, but I’ve been reading and writing my entire life.
When conducting a review, what elements stand out for you?
Every book is different, so my reviews tend to evaluate a wide variety of writing techniques. I love experimental formats and creative figurative language. I also enjoy books that present the world in new and different ways.
What’s the most recent book that you’ve reviewed? Did you find it interesting?
My most recent review was historical fiction, Like Mayflies in a Stream by Shauna Roberts. I loved it. It’s part of the archeology series published by Hadley Rille Books. http://www.hadleyrillebooks.com/archseries.html I highly recommend them.
What type of books do you read for personal enjoyment?
Anything I can get my hands on. I am big believer in reading a wide variety of different genres, styles and authors. I read several books at a time. Currently, I am reading Casual Vacancy by J.K. Rowling, The Night Circus by Erin Morgenstern, Railsea by China Miéville and Extremely Loud and Incredibly Close by Jonathan Safran Foer.
When reading reviews of a book that you’ve already rated, what‘s your reaction if the reviewer gives an opposite take from yours?
I love to read reviews expressing different opinions. Different reviewers tend to notice different things and every reader brings their personal experiences to their interpretation. I’m not a big fan of particularly negative reviews. It’s good to strike a balance between the good and the bad. Criticism can be helpful when it is presented in a respectful and professional manner.
I’ve read your reviews and you have a nice command of the English language. Tell us a bit about your background. Do you feel as though schooling or hands –on learning benefited you the most?
I’ve always loved words and language. When I come across a new word during my reading, I have to look it up. I have two dictionary/thesaurus apps on my i Pad and smart-phone. These are the greatest inventions and save a lot of time.
I have an autism spectrum disorder and communication is challenging for me. Writing is how I express myself and how I learn about the world. I use a person’s word choice during conversation as replacement for nonverbal cues, since I cannot process things like body language and facial expressions. The words a person chooses and how he or she constructs phrases, and sentences is more than an objective statement about what is going on – they communicate intention, personality and emotion. This carries over into how I read. I’m a slow reader, who reads one word at a time.
Have you ever had a confrontation from someone, who disagreed with one of your reviews? What positive input have you had?
Authors tend to appreciate my reviews. I strive for a balance between positive and negative criticism while being objective and fair. Several people have expressed that my reviews teach them a lot about different writing techniques. I wish I could say that everyone loves my reviews, but that isn’t the case. I’ve been accused of being dishonest when writing reviews, because I choose to keep personal emotions out of my reviews. If I don’t care for a book, I maintain a professional attitude, state specific examples and reasons. I would never disrespect an author.
If a reader would like to have their book reviewed, what advice can you give them on finding individuals to help them?
Some social networks are a great place to find people to review your novels. There are some great Facebook pages and LinkedIn groups. It never hurts to ask someone. Don’t be afraid to contact a blogger who you respect. I love hearing from authors who would like me to review their books. It makes me feel like I’m posting quality work.
When you’re not reviewing, what does your life look like?
I read and write. Even if I wasn’t a reviewer or pursuing a degree, I would still read and write every chance I got. Video games are too stimulating for me, and I can’t stand commercials, so I watch shows, movies and documentaries on Hulu and Netflix from time to time. This weekend, I just finished watching the second season of The Walking Dead (originally aired on AMC). I love listening to music and walking through cemeteries – I find them peaceful.
I appreciate you joining us today, Nicole! You’ve giving us a bit of insight, into the mind of a book reviewer. I wish you all the very best.
If you are interested in getting your book reviewed, please visit Nicole’s website where you can read her book review policy: http://nrgalloway24.wordpress.com/book-review-policy/
LinkedIn Profile: http://www.linkedin.com/pub/nicole-galloway-miller/47/397/638
Facebook author page: https://www.facebook.com/NicoleReneeGalloway
Book Review blog: http://nrgalloway24.wordpress.com/
An Autistic Blogs about Autism: http://nrgallowaymiller24.wordpress.com/
Enjoy reading this amusing cheesesteak assessment. My friend shares his thoughts on cheesesteaks across the U.S. Thank you Brian, for allowing me to share your story!
One thing I learned quickly leaving Southeastern Pennsylvania, when I joined the Marines, is that I was leaving the home of the cheesesteak. These sandwiches, are a staple growing up in and around Philadelphia, Pennsylvania. My favorite style of cheesesteak is the “Weber”. This sandwich consists of a cheesesteak with lettuce, tomato and mayonnaise.
Traveling from place to place, I could still watch my Eagles and Phillies on TV but I hadn’t realized that I could no longer buy an authentic cheesesteak.
My first experience was while in Los Angeles, California. While dining out, I saw a menu item called a, “Philly Steak and Cheese.” Excitedly, I ordered it in a hurry. When it arrived it wasn’t served on Amoroso bread and it was not marinated or chopped. The phony had no tomato-based sauce. To make matters worse, the cheese was not American or Cheese Whiz but dare I say, cheddar cheese. It failed the last and final test – There was no dripping grease on my plate. Lying in front of me was the most pathetic excuse of cheesesteakness I had ever seen. It couldn’t have even passed for a Weber. Nope, it was covered with a solid piece of lettuce, not the shredded kind used when preparing the real deal. Another tell-tale sign of this counterfeit was that the bun was cut in half. To me, this was sacrilege!
Since that first time, of being duped, I’ve been across this country, and occasionally I will get sucked into some advertisement, stating that the eater makes, “Authentic Philly Cheesesteaks”. After succumbing to my curiosity, I consistently find their claims to be fraudulent. In North Carolina there is one with brown gravy and mushrooms, Ewwww. In Tennessee, I actually was served one with green peppers. The owner convincing assured me - “That is the way they make ‘em up in Philly.’’ Even though I told him that was not the case, he did not want to listen. Just for the record, no, Steakums are not cheesesteaks either. My spellcheck is even trying to tell me I have spelled it wrong! Cheesesteak is one word not two. Doesn’t anyone get it? John Kerry didn’t get it, for he asked for one with Swiss cheese and was met with laughs while visiting Philadelphia during the 2004 election. Maybe that is why he didn’t get elected.
Everyone in Pennsylvania has their favorite cheesesteak place, mine is Frank’s just north of Philadelphia in Quakertown, Pennsylvania. I have been going in there since I was nine. Back then I couldn’t even see over the restaurant’s’ red brick and slate counter-top. Thirty years later I am still going to Frank’s every chance I get.
The Italian voices of the owners have given way to their Spanish-speaking Guatemalan employees but, the food still tastes the same. From the outside, it’s nothing special to look at, and the inside would never make the grade for a restaurant guide. We as Pennsylvanian’s come here for the cheesesteaks and to us the atmosphere is home. I live in Maryland now and close enough to make that three-hour trip for my cheesesteak cravings.
If you want a cheesesteak, you gotta go to Philadelphia or the Philly suburbs, you simply cannot get it anywhere else. Going anywhere else for a cheesesteak is like going to Taco Bell for Mexican food.
A few establishments like Pat’s and Geno’s have become famous places for tourists to visit and get a taste of Philadelphia.
The History of the First Cheesesteak:
During the 1930s Italian immigrants Harry and Pat Olivieri sold hot dogs and sandwiches on the streets of Philadelphia.Tired of hotdogs everyday for lunch, Pat told Harry to go to the store and buy some beef. When he returned they chopped up the steak and grilled it with some onions. The brothers piled it on rolls and were about to dig in when a cab driver smelled the meat and onions and demanded one of the sandwiches. The cab driver asked how much and Pat never got to eat his. He didn’t know what to charge the cabby so he sold it for a nickel. The cab driver said, “Hey… forget about those hotdogs, you should sell these.” It was not until 20 years later that cheese was added to the sandwich by a longtime employee Joe Lorenzo, who was tired of the same old sandwich. http://www.patskingofsteaks.com/history.html
Considered by most as anti-health food, the cheesesteak is a staple of most Philadelphians diet.
The inventor of the cheesesteak Pat Olivieri (right) Posing with Tony Bennett. Pat would go on to open “Pat’s
King of Steaks”, a Philadelphia landmark.
(Photo courtesy of Pat’s Kind of Steaks
Let’s see what the other reviewers are saying. (Courtesy of Trip Adviser.)
FRANKS- “Best Cheesesteaks in the Universe!” – 5-stars
I have been eating Franks cheesesteaks for 41 years. Frank and Ale knew my father who was on the police force at the time. We could not wait for my father to arrive home with dinner. Franks cheesesteaks with fried unions, sauce, and hot peppers. A large plain pizza. Before I cold drive, I would walk there from Quakertown high school. While attending PSU, we would take road trips back to Quakertown to pick up cheesesteaks. I just called my wife and asked my her to pick me up one on her way back from Allentown. I frequent Pats, Joes and have tried all the others. Hands down, FRANKS makes the best cheesesteaks. Never change.
“Best Pizza and Cheese Steaks north of Philly” 5-stars
30 years, always the best pizza, steak sandwiches made with real sliced beef not processed garbage. Not much for sitting down, just a few tables but awesome take out. Can’t eat cheese steaks anywhere else in the area, and the pizza and pasta is very, very good
“Incomparable steak sandwiches and the best Pizza in Quakertown” 5-stars
About the Author:
Brian Piaquadio is a graphic designer and freelance writer living in La Plata, Maryland. Even though he holds a graduate degree in publication design, his personal passion is Civil War history.
The father of five children, is an avid motocross racer, and War between the States aficionado. Regardless of how mundane, he enjoys writing about his personal experiences growing up in Pennsylvania and of the times he spent serving in the Marine Corps. Brian is presently working on his first book about black code laws before, during and after the Civil War.
I wish you all the best in your writings Brian and thank you again for the informative article!
Yet one last review….
“The Very Best Cheesesteaks in the History of the World. ” 5-stars
I’ve been to all the big name cheesesteak eateries in Philly and to lesser known suburbia establishments to get my fill, of my favorite sandwich. Franks serves the,”Rolls Royce” of steaks. Tender, thin slices of savory, rich ribeye and onions thoughtfully, are encapsulated in lengthy Italian roll. Perfect cheesesteaks + friendly service = My number one pick. – C.J.
Who is Kirsten Walters? A dynamic advocate and patient of Still’s Disease and Rheumatoid Arthritis. She kindly invited me to hang out at her blog for a day. If you’re interested…
Originally posted on Carla Jones' Blog:
As a child, I just liked waving the palms high over my head while singing with the rest of the kids that once a year song, “There’s a Palm”. Some of you may recognize the lyrics: “There’s a palm, there’s a palm, there’s a palm for you and me hallelujah…” These plants were just great to play with. Tapping your pew neighbor on the head with a palm, was a requirement to get the full holiday experience.
On Palm Sunday (some refer to it as “Passion Sunday”), starts the beginning of Holy Week, which ends on Easter Sunday. Christians celebrate the entry of Jesus into Jerusalem, the week before his death and resurrection.
Joyful crowds welcomed him by waving palm branches. The onlookers also covered the path before him with palm branches. Some were mistakenly viewing him as a leader who would overthrow the Roman government. In many denominations globally, a palm branch is given to parishioners to reenact Jesus’ triumphant entry into Jerusalem. We see this again at the end of the Bible (Rev. 7:9) where people from every nation raise palm branches to honor him.
Ahhh…The smell of chocolate is in the air. Nervous tension lingers in the minds of lovers near and far, as they laboriously mull over choosing that one perfect purchase. On Valentine’s Eve, sleeping retailers toss and turn as they anticipate bare shelves, where once droves of heart covered, paraphernalia lay. Some curious Valentines’ Day seekers will delve into the deep historical mysteries that surround this midwinter holiday. Come with me as we enter the world of abbreviated facts and legends dedicated to the, “Celebration of Love”. Indulge, as I toss out a few micro-morsels applicable to V-day.
According to church history, numerous early Christian martyrs were named “Valentine”, and they are honored annually in Rome on, February 14th. These include Valentine of Rome, Valentine of Terni and a third who was mentioned in early manuscripts. (This unfortunate man was killed in Africa.) Only one Valentine wins, “The Most Famous and Influential of all Valentines”. If you guessed Valentine of Rome, you were right! This priest and physician, married young couples in secret thereby violating one of Claudius’s II’s laws. The Roman emperor wanted his soldier’s attention fixed on war, not on their wives. Initially, the ruler enjoyed conversing with Valentine. However after an unsuccessful attempt was made to convert Claudius to Christianity, Valentine was thrown into prison. Before his execution, it is reported he performed a miracle by healing the blind daughter, of Asterius, his jailer. Church records state that St. Valentine did this through prayer and or by applying salve to the girl’s eyes. This miracle, prompted the jailer to convert to Christianity. Legend says that the night before he was to die, the man penned a note to his young patient, signing it, “From your Valentine”. Thus the very first valentine was written. In the morning Valentine was beaten and beheaded. Hypothesized date for his death: February 14, 269 A.D., He was buried the same day at the Via Flaminia, Italy.
The Love Connection - The first link between St. Valentine’s Day and love was credited to Geoffrey Chaucer. The famous writer penned, what is most likely the first Valentine’s Day poem, The Parliament of Fowls in 1383. An excerpt from Chaucer’s poem:
For this was on Saint Valentine’s Day,
When every fowl comes there his mate to take,
Of every species that men know, I say,
And then so huge a crowd did they make,
That earth and sea, and tree, and every lake Was so full,
that there was scarcely space For me to stand, so full was all the place.
Ever wonder how other countries celebrate….
Japanese Change Up – Japanese women feel obliged to give chocolates to all male co-workers, except on a Sunday. Men are expected to return gifts that are at least two or three times more valuable than the gives they received. Here’s the kicker – Returning a gift of equal value as the one received, sends the message that you are ending the relationship.
Underground Purchase – In Saudi Arabia in both years 2002 and 2011, religious police banned the sale of all Valentine’s Day items, for the day is considered a Christian holiday in the country. Shop keepers were warned to remove anything from red from view on this day. Thus a black market was created, causing citizens to retreat to back alleys for their roses and wrapping paper.
Sticker Mania! In Lithuania and Latvia - A friend or family member will, “sticker” a loved one. These little signs of affection are placed on the face and clothing of the one admired.
Three facts for the road…
Number of Valentines sent each year in the U.S. – 1 billion
Oldest known Valentine – One sent by the Duke of Orleans, in 1415 to his wife after he had been taken prisoner by the English.
Expected amount of money spent on chocolate candy Valentine’s Day week -$345 million Dollars
My hope is that you’ve garnished something that interests you from this blip on Valentines’ Day. I’ll wrap things up with a holiday quote “He called me smarty-pants, and I think I’m in love.” – Author known:)
Spiritual Living, Christian Faith CBNhttp://www.cbn.com/sp
Thanks for coming by Charlotte! Tell us about yourself.
I’m 17 years old and currently studying forensic science. I have Juvenile Idiopathic arthritis – Polyaricular Rheumatoid factor positive. I was diagnosed 26th July 2011 at the age of 16. I live in Wiltshire with my Mum and Dad – I also have an older brother serving in the army, who lives in Reading.
Are their special challenges being a teen with RA? What’s the biggest misconception about the disease?
Sometimes I feel like I’m missing out as a teen, when everyone seems to be having such a huge social life. Frequently, I’m not well enough to join in or my hospital appointments take over much of my time, so I have less time to spend with my friends. I feel left out and quite often isolated. It was also challenging when I was first diagnosed because I had my whole life planned out, all my dreams set and I was getting on with life doing everything I enjoyed then suddenly, these thoughts were stopped by my RA. Everything had to change. I think the biggest misconception is that many in society don’t realize that young people can get arthritis. They think that it’s the same as osteoporosis, the same type that that most old people get. Much of society is unaware of the multiple forms of arthritis and believe those with it just have aching joints. In reality, many kinds are much more serious, like RA. It bothers me that people think that if you don’t look disabled, you must not be ill. Rheumatoid arthritis is, for the most part an invisible disease!
What do you do for fun when you’re not embroiled in working on homework?
Before I got arthritis, I enjoyed doing sport-Boxing and horse riding as they were my favorites! However these high impact sport prove very difficult with this disease now so I can no longer be involved with them. I do enjoy some sports and I try to do some form of exercise, that is manageable with my disease. I also enjoy spending time with my friends, reading and just relaxing!
What’s your advice for other teens with RA?
Just keep going! Research the illness and surround yourself with supportive people. Keep talking to the doctors and tell them the specifics about your pain. Take your medication and do your exercises, stay positive and move up and on!
I understand that you are spearheading a very exciting fundraiser for those with rheumatic diseases. Would you give us the details on this event? How can those who are interested in this auction, contribute to it?
Yes, this will be the first of many I hope! I am holding a raffle April 28th, 2012 , for the Royal National Hospital for Rheumatic Diseases in Bath, England. It is the hospital where I am treated. They do an amazing job and specialize in arthritis and similar illness. Many people being treated have to visit lots of different places but everything there is under one roof! They provide physiotherapy and occupational therapy. The hospital even has their own hydro pool which are hard to come across around here. They also have a gym. Patients can go there on treatment courses where they are taught how to cope and manage with their illness, mentally and physically. Everyone there is really friendly and always go the extra mile to help. The rheumatologists there do a fantastic job and I feel that they really are not credited enough, so I want to draw attention to their work. I am doing this event to thank them for all they have done to help me. They are truly wonderful people! I feel it’s important to give something back to those at the hospital. I am asking the public to donate prizes and so far I have been overwhelmed with kindness! Here are some of the donations that I have received for the raffle:
Where can my readers contact you to get the details on how to make a donation?
It is with regret that raffle tickets are not for sale for people in the USA because most of the prizes are for local places (gardens, parks, restaurants etc.) However if they wish to donate money, they can visit my “justgiving”, page. http://www.justgiving.com/Charlotte-Stacey0 Or there is a link on my blog. From this site they can donate online or via text. If you do wish to find out more, it is regularly updated on my blog or you can see my twitter feed. For further information the public can email me at firstname.lastname@example.org .
What direction will you be headed after high school to follow your dreams?
I want to study criminal psychology, so I shall hopefully continue to a university to do this. I’m not too sure which university I wish to attend, however I want to stay close to home. I have a few in mind such as Bristol University, Cardiff University and Derby (which is close to my Grandparents). I am also looking at staying on at college and doing a university level course. But I hope to study Forensic Psychology for this is the career I want to pursue. I had to adjust my dreams a bit due to my RA but it won’t stop me from following them.
Thank you Charlotte, for the inspiring interview. I think it absolutely fabulous that you are making a difference in the lives of so many. Your gracious attitude is a example for us all. I have no doubt you will raise awareness to rheumatic diseases, as well as raise a great deal of money to benefit your hospital!
For more information:
Christmas Eve dessert would not be complete without these flavorful, moist cookies. Grandma Veno and my Mother faithfully rolled out these family favorites year after year. Mom became my culinary teacher and we continued this baking tradition. Now I enjoy creating these treats with my kids.
Anna Veno’s Sugar Cookies
5 cups of flour
1 1/2 cups of sugar
1 c. melted shortening
1 tsp. baking soda
1 tsp. baking powder
2 beaten eggs
1 c. buttermilk
1 tsp. vanilla
1 – 2 tsp almond extract
1/8 tsp. of salt
Pre-heat oven to 375 degrees. Melt shortening on stove or in microwave. Remove and cool. When completely cooled beat in sugar. Mix dry ingredients in a separate large bowl. Alternate dry ingredients with buttermilk, then mix thoroughly. Roll dough on to clean floured surface. Cut out desired shapes with cookie cutters. (1/8 of an inch thick) Decorate cooled cookies with buttercream icing and sprinkles. Bake for 10-12 minutes. Makes three dozen cookies. Buon Natale!
Quick Buttercream Icing
3 1/2 cups of confectioners’ sugar
1 stick of butter
1 tsp vanilla
4-1/2 Tbsp milk
Mix all ingredients in a medium size bowl until well blended.