My book, Death by Rheumatoid Arthritis, chronicles my Mothers’medical and personal battle with this autoimmune disease.
A year after she began to have mysterious headaches, my mother was diagnosed with spinal cord syndrome. The RA had eroded part of the bones in her c1 and c2. Due to the instability of her neck, she was not a candidate for life-saving surgery. Shortly after late diagnosis, she went home to be with Jesus.
Celia Veno was the most caring, compassionate, loving mother you could imagine.
My mother at age 14.
My mission is to promote MRI’s or neck x-rays for rheumatoid disease patients, especially if they are experiencing symptoms of neck instability.
One-hundred percent of royalties from Death by Rheumatoid Arthritis are donated to the Rheumatoid Patient Foundation. It’s the best site for RA patients to connect, find support, seek advice and receive compassion. I’m humbled and honored that Kelly Young O’Neill has appointed me to be a Partner and Advisory Board Member for this outstanding organization. For more on RPF, go to rheum4us.org
*Digital artwork by Laura Gelsomini